Spinal Muscular Atrophy

Superior Healthcare provides personalised, nurse-led home care for individuals with spinal muscular atrophy, assisting children, young people, and adults to live well and independently.

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Care for people with spinal muscular atrophy

Superior Healthcare supports children, young people, and adults living with spinal muscular atrophy.

We create reliable, sustainable complex care packages that clients and their families can count on 24 hours a day, 365 days a year.

Together with a team of expert healthcare assistants and registered nurses, we focus on improving health outcomes, reaching milestones, supporting educational success, and assisting our clients to live life on their own terms.

How we can help

Our nurse-led team offers tailored home care for children, young people, and adults – as well as respite for families. Whether it’s day, night, or 24-hour nursing care, we can help. We offer:

Day or night care
24-hour care
Live-in care
Student support

Supporting daily needs and active lives

Our specialist team of carers and nurses provide comprehensive support, from household chores to clinical interventions, expertly recognising and managing our clients’ changing physical and social needs.

Individuals living with spinal muscular atrophy experience muscle weakness. Many of our clients use a gastrostomy (PEG) or jejunostomy tube for medication management and nutrition. Our expert team is also trained in providing non-invasive ventilation.

Thanks to our care and nursing teams, many of our clients lead active lives and pursue their passions as we manage their day-to-day symptoms.

Expert care and nursing team

The children we support enjoy visiting hydrotherapy pools and attending school with our specialist carers and nurses. We have also helped many young people access college and university.

We collaborate with third parties to help clients and families by adapting their homes to maintain a comfortable temperature and installing necessary equipment, such as hospital beds and hoists as mobility needs change.

Nurse managers work with multidisciplinary teams, including neuromuscular physiotherapists, occupational therapists, dietitians, and speech and language therapists, to regularly reassess the care plan and implement new care strategies as needed.

Complex care brochure

Clinical support

We work with children, young people, and adults living with spinal muscular atrophy, adapting clinical and social care support as needed. The clinical interventions we can provide include:

Tracheostomy and/or ventilator care (BiPAP/CPAP) and support to maintain a clear airway
Gastrostomy or jejunostomy care
Full moving and handling
Personal care, including continence care
Suction or cough assist support
Positive behaviour support
Medication administration
Epilepsy management

Ezra's Story

Ezra is a young boy who was born with spinal muscular atrophy type 1. He loves space and can tell you what Saturn’s rings are made up of. At school, he enjoys playing with his friends.

He has nursing care around the clock – a team of paediatric nurses that support him so that he can go to school, and they look after him at night while his parents are asleep.

"When the Superior Healthcare Nurses came onboard, I realized that I did need a good night's sleep to be able to look after Ezra the next day. They became part of our family quite quickly. They love Ezra, they care for him, and I can see that really clearly, so I can trust them. And Ezras care has been a lot easier for me, so I am really grateful for them."

- Portia

Ezra's story

For us, it's personal

Superior Healthcare was founded in 2006, following our CEO’s own experience of locating a care package to support his brother, Alex, who sustained a traumatic brain injury at age 11.

Having experienced firsthand the importance of high-quality, compassionate, and consistent complex care, we are driven to ensure that everyone – including people living with spinal muscular atrophy – can live a fulfilled life, with fun, dignity, independence, and choice.

Our Story

Make a referral

Are you or a loved one living with spinal muscular atrophy?

If your care is funded by an NHS ICB, a county council, or a Case Manager or Financial Deputy, we can discuss transferring your care to Superior Healthcare.

Let us help you. To get started, make a referral or call us on 01227 774873

Spinal muscular atrophy FAQs

Superior Healthcare supports people and their families who are self-funding care or using a personal health budget.

If your care package is commissioned by an NHS ICB, a county council, or by a Case Manager or Financial Deputy, we can talk to them about moving to us today.

To enquire about the cost of a package, click ‘Make a referral’ or call us at 01227 774873.

Our team members receive a five-day, in-depth, classroom-based training syllabus with practical workshops before being introduced to our clients.

The training covers all aspects of the Care Certificate and includes detailed instruction on the skills required to support complex client needs, such as tracheostomy management and gastrostomy.

Our care and nursing teams supporting individuals with spinal muscular atrophy receive client-specific training tailored to each person’s unique needs. This training continues as the individual’s care evolves.

All the employees we recruited to support people with spinal muscular atrophy are experienced, qualified and compassionate.

Click ‘Make a referral’ or call us at 01227 774873.

Superior Healthcare is regulated and rated ‘Good’ by the Care Quality Commission.

We work closely with specialist hospitals, including the Evelina London Children’s Hospital, Guy’s and St Thomas’, and the Royal Brompton Hospital.
We employ a team of trained carers, support workers and registered nurses who are managed by our team of nurse managers.
Superior Healthcare has up-to-date safeguarding and whistleblowing policies and delivers training to all members of our team.

Spinal muscular atrophy is a rare, neuromuscular condition. It causes progressive muscle wasting and weakness. It may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. How severely people are affected, and in what way, varies greatly. (Source: Spinal Muscular Atrophy UK)

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